Saturday, October 17, 2009

Beating those hospitalization blues - Part I

In the recent past i had the (mis)fortune of having to spend close to 43 days hospitalized and had the distinction of being classified and discharged as a patient with "Pyrexia of Unknown Origin" (more on this condition here).

This post is not about my clinical or physical condition, nor is it intended to go deep into the medical technicalities best left to be discussed in the consultation rooms of able minded physicians of the world. This is just a post to remind myself of the psychological experience, the trauma faced by me (the patient) and my parents (the attendants) and perhaps help out others who find themselves in a similar situation. If i were to make this post sound more dramatic then i would name it - "How to mentally survive more than 40 days of hospitalization"!

I have split this post into two parts. The first part (that is this one) emphasizes on the points that i feel are the most relevent and important with respect to surviving the hospital stay. The second part covers aspects that make sure that survival happens with a certain amount of fun and a happier psychological predisposition.


- The truth is you really can't be that strong

The most oft repeated words of advice when you are hospitalized would probably contain the following phrases - "take courage", "be strong", "don't worry", " stop worrying". These words will be used with the best intentions by friends and relatives.
The truth remains that it boils down to what you are feeling inside your head. On the 21st day while i was suffering with a temperature of 104F something snapped inside my head, death felt like a preferable alternative. Convinced that i am on the path of certain death with a terrible disease i made a list of all my assets, liabilities, bank accounts, debt, investments (details i had never shared with anybody) and shared the details with my parents (who were taking care of me) telling them to expect the worst; a move that served to upset my parents badly!
Perhaps i was overreacting, but then a long stint in the hospital can have a debilitating effect on the morale, however optimistic we are in the "normal" world. There will be periods where it seems like things are getting better, and then suddenly things are back to what they were or perhaps worse. This roller coaster ride is what is causes the maximum damage, the remaining sections outline the best way by which a long stint at the hospital can be dealt with.


- Having a good support system helps - parents are invaluable


The most important people in the case of a long hospitalization are the people who take care of you and the support system that sustains them (friends and relatives). My parents were my biggest source of support, or should i say the only source. This happened mainly because visitation was limited due to the high risk of infection. At times like this paternal instincts come out most strongly. My dietary needs, my clinical needs, literally all my needs had to be taken care of my parents and if not for them surviving the ordeal would have been impossible.
Being able to talk to friends and colleagues is another important support system. Having the cell phone next to me and being able to make and receive calls proved to be a good source of support from a mental perspective.
One of the most important aspects of my recovery was the conversations i would have with my girlfriend. The ability to talk to her, share her life and my life through a telephonic conversation had a very positive effect on my mental state. Just the thought of listening to her voice was enough to make me feel better and actually talking to her made me feel mentally and physically relaxed.


- Communicating with the doctors and medical staff is extremely important

The single most important person from a medical staff point of view is the doctor who is handling your case. The resident doctors and the staff nurses are equally important, but it is most important that every single symptom both physiological and psychological is communicated with utmost clarity to the big one. Nothing is insignificant. A slight involuntary twitch of the eye, a bout of heavy sweating, a few dry coughs, everything has some significance to the doctor. If the patient is not able to keep track of these, atleast the attendant should. Case in point, one day my aunt noticed that the whites of my eyes were really white, no traces of any blood vessels, I ignored this point while the doc was on his rounds, however my aunt persisted and communicated this to the doctor who then did a thorough re-examination recommended some tests just to ensure that things were all OK. Needless to say those tests did return some problems that were minor but required immediate attention.


To be continued ...

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